2022.01.22 04:43 mptyvessel Docs, what are my odds of finding out what is wrong with me?
39M, Caucasian, 5'8 160 pounds. Muscular and fairly fit since my youth. I have struggled since an early age with cognition, feeling lightheaded intermittently, an unstable walking gait that varies at times, trouble regulating body temperature at times (particularly cold), feeling intermittent stiffness and varying dexterity in legs, hands and fingers. Particularly in winter, I get chilled to the core with teeth chattering, trembling all over, extra dry skin particularly on my wrists, hands and palm side of the fingers. I get pretty bad "pee shivers" all year around. I barely graduated from high school. Couldn't focus on the work. I've never driven a vehicle at 39 years old. Can't focus enough on the road. Sleep is very poor and I never feel rested. At various times and ages in my life, sometimes when drifting off to sleep I would wake up and feel like I was floating/vibrating all over my body head to toe. It felt like someone lightly 'pushing' on my skin making it move in thousands of places.
Things exacerbated in December 2019. I went to the ER with palpitations, trembling all over as if freezing cold and feeling adrenaline at the same time, very frequent urination, 170/113 blood pressure that was bouncing up and down, jitteriness/anxiousness, trouble speaking during that jitteriness, skin color changes (I've had these for all of my life), trouble walking (my legs felt jittery and like they were intermittently not functioning properly). I've been that way since with ongoing symptoms that are intermittent. Sitting down can make my legs feel numb sometimes. Standing up in place makes me lightheaded, ears can ring, etc. Leaning forward over a sink while standing or leaning forward while sitting at my desk can make my ears ring and make me lightheaded to nearly syncope. I also developed exercise intolerance. I used to be able to mow both lawns back to back. Now I struggle to mow a few rows without heart rate jumping to 160. I can do cardio on the recument bike for 30 minutes straight, but heart rate will hit 150-160 and stay there and I will feel severely lightheaded and legs will get extremely tired.
I've been through a few ER visits, have seen 4 cardiologists, an endocrine/thyroid doc, two sleep doctors, a few sleep studies, a gastroenterologist, a couple of neurologists, a couple of primary care doctors and a functional neurologist.
At the end of 2020, a Tilt Table Test was administered by a cardiologist. Just being tilted did nothing and my vitals fluctuated (as they do 24/7 regardless) before they even tilted and as soon as equipment was hooked up. Nitroglycerin tablet administered during testing. Blood pressure as recorded over just minutes: Blood Pressure 114/64 Blood Pressure 109/61 Blood Pressure 99/59 - Fainted during tilt table test; IV started and test ended. The cardiologist stated that my Sympathetic Nervous System over-reacted and noted abnormal vitals before the tilt table test began.
As best as they can tell when all diagnosis are pooled together, I have:
Postural Orthostatic Tachycardia Syndrome (POTS) Dysautonomia with autonomic dysfunction exhibited by significant fluctuation of heart rate and blood pressure with a sympathetic response that is excessive, as seen on tilt table test. Post-prandial hypotension and a constellation of other symptoms like fatigue, shortness of breath, palpitations, chest pain, rapid heartbeat, nausea/gastrointestinal pain, headache, dizziness, tingling, urinary frequency, anxiety, sleeping problems. Sometimes my stomach, small intestines (mid-abdomen), colon (lower abdomen) and bladder all feel like they 'ache' at the same time and then it just goes away eventually. Sometimes my belly looks a little distended during the day vs first thing in the morning. Bowel movements can be 2-4 days apart and have been for most of my life.
General Anxiety Disorder - How they can prove 'anxiety' in all of this malfunction is beyond me.
A 2018 in-lab study showed about 50 Respiratory Effort-Related Arousals (RERAs) in about 2.75 hours. My AHI was below 5, so no obstructive sleep apnea diagnosis. No central sleep apnea detected at all. Very fragmented sleep. I wake up at least dozens of times all night and it's pretty vague as to why. A mid-2020 in-lab sleep study and titration study revealed 29 central apneas in like 90 minutes of sleep. Then I went back again in-lab for a titration study and they determined that CPAP caused Complex Sleep Apnea, but I did fine on BiLevel and all central apneas, RERAs, obstructive apneas, etc., were flat zero at a modest 9 IPAP/5 EPAP pressure on the BiLevel.
I visited a functional neurologist (he treats brain injuries, balance disorders, chronic pain, migraines, vertigo and they are also a POTS treatment center even though MDs seem to have ire for such doctors who are also chiropractic-related). He did a VNG test in-house. Square wave jerks of the eyes and malfunction of the middle brain that controls eye movements. I have trouble reading sentences properly because my eyes tend to 'skip' words or letters in various parts and I have to re-read. My fingers type the 'wrong' words on the computer sometimes or make larger amounts of typos than I used to have. Hippus was (rapid fluctuation of pupil size irrelevant to exposure to light or darkness) was observed. I have so much eye fluttering around the skin of the eyes that it does it constantly throughout the day. I can both see it and feel it when my eyes flutter. Excessive startle response to noise/light stimulation, hyperreflexic, full-body color changes due to poor circulation, Postural Orthostatic Tachycardia Syndrome (POTS) was also confirmed yet again. Possibly HyperPOTS with fluctuations. Choppy muscle movements. I can move my arm and get lightheaded and feel a wave that goes down my body and makes the rest of me feel like the other limb movements are choppy.
My primary care doc office recommends me to my neurologist and says the majority of concerns are within the expertise of the neurologist. The neurologist has no idea how to treat my dysautonomia. He won't comment on the VNG findings from the functional neurologist and said I should "see a specialist in dysautonomia with my symptoms" and those don't really exist. There's like one or two in each state and they're usually a neurologist at that.
I'm unable to work like this, have an SSA Disability attorney and have filed for disability. What are the chances of us finding out why I have all of this? I feel things that others don't. Nerve twitches, pulse in each hand and other areas, blood moving like half of a foot through veins/arteries after each heartbeat. My cardiologist thought that was bizarre and had no idea what to tell me. I've been checked for MS lesions on the brain via MRI. They've found nothing wrong with me, but I feel so awful every day. I'm in the state of Georgia. Any tips?
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2022.01.22 04:43 mildlyanxiousguy I really like a co-worker and I believe she likes me back, but I have no idea how to connect with her.
I'm 37 and she's 32, and she's really pretty, humble and nice. I've noticed that sometimes she checks me out, or when we cross paths in the work, even when far away, she always greets me even if we greeted already some minutes ago, or she would stare at me for long periods when crossing paths again and I'm busy on something. I just feel this vibe that she is interested because she also happens to sit near me everytime all the co-workers go to the dinner room to eat.
The few times we've talked she seemed very attentive and curious about me. The problem is that I get too nervous with pretty women and struggle to find any interesting topic that we may chat about to know each other and I can't help but find excuses to cut the chat as soon as it gets stale and get away and get "busy" on whatever it ocurrs me to do even if I have nothing to do.
What are some tips, books, videos or whatever that you (specially men who know how to talk to women) would recommend? I'm specially interested in men's take that helped them overcome this mild social anxiety and hone their social intelligence.
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2022.01.22 04:43 MCHerobrine where’s ur base
2022.01.22 04:43 JulzzXP_ BRINDAAAA
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2022.01.22 04:43 moukohan After a year of sciatica, I feel miserable
I have sciatica for 14 months in my right leg and it was manageable for most part of last year. Had 2 mri showing mild protrusions in my lower back, and one more visible, but not impingement of nerves. No stenosis.
I could walk, stand, sit with little pain.
I suspect my problems aggravated like 5 months ago when I could not lay down without pain. I found out that by moving my hips while horizontal I could “redirect”my nerve in a painless position. But standing up again made me feel double pain. I also started hearing pops in my hip.
Anyone feeling the same?
I wake up in pain. Take a hot shower that resets my back to almost normal for the whole morning but I’m forced in bed during the afternoon. Doctors seem to not care much and prescribed me pain killers.
Anyway, the last three weeks have been horrible, I spend most of my day in bed and I scheduled an appointment with a neurosurgeon for next week.
I am afraid I will be in chronic pain forever.
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2022.01.22 04:43 SinoBot Images from the current China-Iran-Russia joint naval exercise
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2022.01.22 04:43 xdToom Srgb concern for Lenovo ideapad slim 3i
I was looking to get this laptop
I do a fair bit of photoshop and I have heard that the ideapad 5 has an srgb % of 56% and I would prefer something with at least 80% or more if possible. Does this model I have linked have a better % or should I try looking somewhere else.
If someone can let me know more details (as I can’t find more information anywhere) about this I would appreciate it a lot.
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2022.01.22 04:43 littleJonnyyyyy Worked away for a week. Leeroy was very excited when I got back lol
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2022.01.22 04:43 Awestromy Uhh, what’s the catch? 😬
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2022.01.22 04:43 RishStar_ About Robby/Johnny/Miguel
Maybe I misinterpreted it, and if so please educate me I am kinda confused. I watched Cobra Kai back and to me, Robby’s hatred towards Johnny for picking Miguel seems initially confusing. Since Johnny has met Miguel, and even before Robby first saw them together, Johnny tried(?) to talk to Robby only to be rebuffed. Through the series, Robby denies any approach from Johnny and then turns around and gets mad at Johnny for picking Miguel over him?
Again, not trying to accuse Robby of anything, just confused. Please educate me as I’m pretty sure I misunderstood this character three-way relationship.
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2022.01.22 04:43 Hellen-Morey Franco-German Friendship Day today - The News International
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2022.01.22 04:43 FallCompetitive7976 22-January I am still here
2022.01.22 04:43 indebuurt Mysterie: wie is deze man die met opgestroopte mouwen in de haven staat?
2022.01.22 04:43 DeutscheSoldat Will this affect my Army career?
To make the long story short, I am currently in ROTC in college and on my way to becoming an officer in the Army. Currently, in the process of security clearance. Fall of 2020 I was denied a Temporary State Pistol Permit (home state), for reasons I'm not sure. I was legal age when applied, never been arrested. I did, however, get in trouble in school a couple of times that warranted the attention of police but again no arrest was made, maybe I got a record about my behavior in the past? I don't know. Anyways, I'm well past that time in my life. I've just proposed to my fiance, I'm about to graduate, and have an exciting career ahead of me. I've decided to postpone my Pistol Permit Appeal hearing since I am busy and still in school and military training. Will this hearing for appeal affect my career when it comes to security clearances or my career path in becoming an officer?
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2022.01.22 04:43 AyoValle Is the Czech Republic really landlocked?
I recently just found out that after ww1 a small piece of harbor in Hamburg, Germany was leased to Czechoslavakia and to this day it is still owned by Czechia. Wikipedia says "...leased to Czechoslovakia, since the Elbe is the only navigable connection to the oceans for this landlocked country." So im currently wondering: Is Czechia not landlocked because of this? Or does it not count because its an exclave or because it is no direct sea access?
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2022.01.22 04:43 crytoloover Cryptocurrecy Highlights in Coinmarketcap
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2022.01.22 04:43 aleister94 Psychic Abilities of Starship Troopers 3 Explored | God bug - Brain Bug ...
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2022.01.22 04:43 Hellen-Morey Facebook stalling report on HR impact in India: whistleblowers - The News International
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2022.01.22 04:43 crytoloover Bitcoin Ready To Break Out? [HUGE BTC
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2022.01.22 04:43 Le_Toxic7 English is ____.
2022.01.22 04:43 swimmingskibble Day trip to Vegas was very successful! (I live in Salt Lake City.) I’m so excited! I’m new to whiskey and haven’t tried most of these, but I was super pumped to snag a couple back up bottles of my current favorite OF 1910.
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2022.01.22 04:43 Laguerche I’m nervous I’ve damaged my brain
So lockdown has been tough for me, like it has been for everyone. I’ve fallen into a bit of a slump in the last 2 months. I’m working full time etc. but I’m smoking 2/3 joints an evening.
I’ve always been a writer and a thinker. I have never been able to stop the torrent of thoughts and daydreams in my mind. I have inattentive ADD, and the intensity of a mind like that is something I’ve wrestled with a lot. I have enjoyed the highs of it which include obsessive daydreaming and decisiveness which often leads to exciting and adrenaline fuelled life experiences. I’ve also struggled with the lows of it, being absent minded, easily distracted and easily bored.
Weed has filled a hole in my monotonous lockeddown life for the last few months, and is something I’ve used throughout the last few years but something has changed. Never has weed affected me as it is now. I feel disconnected from the torrent. I feel numb to emotions, uninterested in everything. I feel I have less intellectual flexibility and am forgetful. I don’t know if I’ve tuned it out or singed out my mind. I don’t have the constant flow of existential wonderings and I’m terrified that I’ve damaged my brain to a point whereI won’t be able to get that side of myself back and I’ll just be a sleepwalker forever.
Advice? Thoughts? Comparisons?
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2022.01.22 04:43 Skywing1280 Minecraft Unus Annus Shrine my friends and I made. We spend like 30 min getting the right shot and lighting as well as the firework timing.
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2022.01.22 04:43 Spotstrike What was your "and time slowed down" moment?
2022.01.22 04:43 Natural_Ice_501 2 days ago, the European Parliament adopted a resolution on violations of fundamental freedoms in Hong Kong, and the interesting sections have been highlighted ... Never thought that Hong Kong is linked to banned books...
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